Le Bourg-d'Oisans, Rhone-Alpes, France
Cinq étapes dans les alpes pour la lutte contre l'epilepsie
In 2010 my (David Holman's) daughter Evie was diagnosed with atypical absence epilepsy with eyelid myoclonia. Before her diagnosis she was having up to 200 absences a day which were very hard to witness and also quite debilitating for her as her head would often jerk backwards and occasionally she would fall to the floor.
Soon after Evie’s diagnosis she started on a medication called Epilim that she started taking twice a day. According to sources on the internet there was only a slim chance that this medication would be effective for her condition. Luckily for Evie, it didn’t take long for her seizures to reduce, and after 2 months she was seizure free. The last seizure I saw Evie have was in January 2012 so she has been seizure free for 2 years now. The whole family is so delighted that Evie has responded well and that she can get on with enjoying life without a seizure every couple of minutes.
Before Evie was diagnosed I would spend hours researching epilepsy on the internet to see if I could work out what type she had. During that process I stumbled across a number of blogs where parents were describing their child and their battle with epilepsy. It was so upsetting to read as the future was uncertain for so many of the children. When Evie responded well to her medication I was over the moon but felt that more needed to be done to improve our understanding of the condition and the treatment options available. It was then that I decided to take on a significant challenge to raise as much money as possible for the Epilepsy Society.
So in August 2014 I will be attempting to cycle up 9 of the biggest mountains in France in 5 days (Col du Ornon, Alp d’huez, Col du Galibier, Col du Telegraphe, Col du Glandon, Col du Croix de fer, Col du Madelaine, Col d’izoard, Mon Ventoux). This will be the equivalent of running 5 marathons in 5 days, perhaps harder, so a huge undertaking with a massive amount of training required.
A number of close friends have decided to join me on this challenge (Jon Brown, Paul Veazey, Mark Surowiec, Alex Green, Ian Murray, Christophe De Belder). They are all 100% committed to the cause because they have seen firsthand how serious epilepsy is and how it can disrupt a child’s everyday activities.
We are aiming to raise £6,000.
Please dig deep and help support the sufferers of epilepsy
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